The Repository @ St. Cloud State

Open Access Knowledge and Scholarship

Date of Award


Culminating Project Type


Degree Name

Child and Family Studies: Family Studies: M.S.


Child and Family Studies


School of Education

First Advisor

JoAnn Johnson

Second Advisor

Glen Palm

Third Advisor

Jerry Wellik

Creative Commons License

Creative Commons License
This work is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 4.0 License.


The main purpose of this study was to examine parents’ experiences of the diagnostic process of their child’s intellectual and developmental disability. Research over the past thirty years has demonstrated that most parents are not satisfied with the diagnostic process, and has suggested best practices for professionals. The hope for this study was that parents’ experiences have improved since the last research was done and that best practices are being followed. Parents in the Twin Cities metro area of Minnesota were interviewed regarding their experience of the diagnostic process. The results indicated that parents are still dissatisfied with the process and raised a number of concerns, some of which were unique to this research. Suggestions and implications for practice based on these results are presented.