In this autobiographical essay, the author tells the story of the life she shared with her mother, Suzy, who was diagnosed with Multiple Sclerosis in 1973 and who died May 31, 2013. The writer explores the hidden costs of a healthcare system designed to promote "efficiency" rather than quality of life for people with longterm disabilities and their caregivers. She argues that heroic narratives of caregivers legitimate the withholding of care and support for care by the healthcare system and its institutions.

In Memorium.pdf (2041 kB)
pdf of essay



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