Abstract
Individuals living with rare diseases and their families wait in desperation for up to decades for access to an FDA approved treatment. This article tells the story of a mother and son who visited a clean lab where enzyme replacement treatment was manufactured for clinical trials. The short tour proved life-changing for the author and her son.
Recommended Citation
Ayik, Kara A.
(2025)
"Room for Hope: How a Tour of a Clean Lab Changed Lives,"
Survive & Thrive: A Journal for Medical Humanities and Narrative as Medicine: Vol. 10:
Iss.
1, Article 12.
Available at:
https://repository.stcloudstate.edu/survive_thrive/vol10/iss1/12
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